Although many of us with early-onset and progressing PD often become disheartened by our fatigue, along with our diminishing capacities to multi-task and generally organize our lives as we once did, we have not lost our imaginations, or our desires to continue to contribute to the world at large. With a significant number of us forced by PD to retire prematurely from full-time work, some of us shift gears and use our newly freed up time to attend support groups, exercise and dance classes, and to exercise our advocacy muscles to fight for issues we deem important. We often take better care of our health than before our diagnoses, and find ways to support one another. This can mean adaptively adjusting and utilizing our professional and creative skills to our new lives, often in a volunteer or part-time capacity.
I have personally found fascinating, the whole theme of how exactly our diminished executive functions interfere with our daily lives in practical ways. Very few people are discussing this within the PD community, other than lamenting our emerging difficulties in completing complex tasks, organizing our clutter and mail, finding lists we've made, paying bills, and remembering what we said a moment earlier.
Web site devoted to providing a Resource Guide with listings of issues, events, articles and services of excellence recommended by patients, for the PD community, locally, nationally and globally.. We are also committed to the goal of providing speakers with PD to speak "with the patient voice" to educate the public and health care professionals.
Through Our Eyes: Resources and Information About and For Those Living with Parkinsons
- PDRESOURCESNYC
- Self-Help Web Sites with Articles & Brochures, and Web Forums
- "Through Our Eyes" PD Speakers Panel: Learning About PD from Patients
- Brooklyn Parkinsons Group & Dance for PD
- "Through Our Eyes" Poster Information
- Presentation of "Managing Our Diminishing Executiv...
- "Capturing Grace," about a group of Brooklyn, NY d...
- Join Advocacy Efforts with Parkinson's Action Netw...
- Collection of Parkinson's Poems in PDF Creativity ...
- Shattering the Myth of "Wow! She's Gotten So Much ...
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