PD Self-Help Resources for Issues Affecting Your Parkinson's (E-newsletters, web sites and webinars

GET YOUR QUESTIONS ANSWERED BETWEEN DOCTOR'S APPOINTMENTS

Many of us have questions about our PD for which answers and suggestions are available on any number of helpful, comprehensive, highly reputable websites with many sections devoted to patient care. Our neurologists (and their stand-in's) are often not easy to reach, and the truth is that answers are available to many of your concerns with a click of your mouse.
On most sites, you'll have the opportunity to either read your information on-line, download and save it on your computer, print it out, or order brochures about your concerns from 
National Parkinson Foundation, Parkinsons Disease Foundation, Northwest Parkinsons Foundation, World Parkinson Coalition (worldpd.org) Michaeljfoxfoundation, and PDPipeline (a forum run by PD advocates) among others. You can also watch on your computers, archived versions of informative Web Forums dedicated to your particular concern online.

These websites provide information about non-motor daily PD problems which affect us as much as motor changes.
Among them:
Constipation, Nausea, Incontinence, Insomnia, Dry Mouth, Swallowing Difficulties, Balance problems,
Nutrition, Meals and Medication Timing, Avoidance of Protein before and dosage of Sinemet, Hallucinations,
Cognitive Changes which include short-term memory loss, disorganization, difficulty transitioning between activities, compulsive behaviors like late-night, on-line computer games or gambling, and Depression and Anxiety.

Hopefully, some of your questions will be addressed by these resources. Check sections of those websites addressed to 'Patient Care' or 'Living With Parkinsons' 

A few of the best websites are www.parkinson.org, www.pdf.org,  nwpf.org  worldpdcoalition.org

Northwest Parkinsons Foundation (www.nwpf.org/)
is an excellent newsletter out of Seattle with summaries of important events, articles and research relating to PD, but it is also a superb informational website for questions and concerns about managing your PD.
Be sure to click on link to 'The Tip Jar' for multiple suggestions about managing daily life
with PD-you can submit your own coping strategies-it's a wonderful idea!
(Excerpt):
"Welcome to the Tip Jar. Over the many years of working within the Parkinson's community we have heard some wonderful tips and insights on living with Parkinson's day-to-day. On this page we have compiled some of those helpful hints. These user tips are for the patient, family member and caregiver, and are meant to help improve the quality of life for those touched by PD.
This is also an opportunity to share your successes and ideas to help others improve their day-to-day journey with PD. You can add to any of the ideas already posted or create a new one of your own.
We also ask that you forward this resource to anyone else you think it might benefit. As always, if you have any questions please send us an email at info@nwpf.org or call us at 1-877-980-7500. We always look forward to hearing from you.
Click on 'Home'  page at.'nwpf.org' and explore 'Care and Support' section.
Be sure to open link to 'Medical Alert Card'
https://www.nwpf.org/CareAndSupport/MedicalAlertCard.aspx

Parkinsons Disease Foundation (www.pdf.org/)  
National Parkinson Foundation, (www.parkinson.org) 
Note: Two above org's are now merging


An invaluable resource worth ordering is 'Parkinson's Disease Resource List.'
 Contact PDF's Parkinson's Information Service (PINS) at (800) 457-6676, if you can't find what you need
Order the print Parkinson's Disease Resource List.. The online Parkinson's Disease Resource List is filled with an exhaustive list of articles pertinent to living with Parkinsons.


Crucial Preparedness Kit For Future Hospital Stays 
Awareincare.org  Please read, download, print out and save