Through Our Eyes: Resources and Information About and For Those Living with Parkinsons
- Self-Help Web Sites with Articles & Brochures, and Web Forums
- "Through Our Eyes" PD Speakers Panel: Learning About PD from Patients
- Brooklyn Parkinsons Group & Dance for PD
- "Through Our Eyes" Poster Information
- Presentation of "Managing Our Diminishing Executiv...
- "Capturing Grace," about a group of Brooklyn, NY d...
- Join Advocacy Efforts with Parkinson's Action Netw...
- Collection of Parkinson's Poems in PDF Creativity ...
- Shattering the Myth of "Wow! She's Gotten So Much ...
Thursday, May 26, 2016
Parkinson's People: Please Take My Brief Survey About Advocacy and Volunteering as Alleviating PD Apathy
PLEASE TAKE MY SURVEY
DOES ADVOCACY & VOLUNTEERING ALLEVIATE PARKINSON'S APATHY?
Thursday, May 12, 2016
Join us in Portland, Oregon for the 4th World Parkinson Congress; September 20-23, 2016
More than 3,500 people from 65 countries will attend the WPC 2016 in Portland, OR to learn about cutting edge science, clinical research and comprehensive care from some of the most renowned health professionals, researchers, and advocates globally. Registration is open NOW!
Look for Travel Grants if necessary.
My Belief: Advocacy Alleviates Apathy Caused by Parkinsons: My Video Submission to World PD Congress 2016 Video Competition
Advocacy and Helping Others Can Be An Antidote to Apathy: My 3-Minute Video made with Myra Kooy
My video is about realizing how advocacy and doing good for your community alleviates the crippling Apathy which often comes with the whole package of PD, and which depression meds don't help.
I was petrified to do it, but because this felt so vital to convey, I pushed past my self consciousness about PD symptoms of speaking too fast, too low, and too garbled when I get very excited to convey something important.
This all is all like a dyskinesia of your expressive speech mode, common but exasperating and embarrassing.
So with my wife Myra as coach, I practiced speaking about what I needed to share into webcam on computer about three times to really assess myself.
When I realized I didn't look so bad, but just couldn't slow down my speech, I decided to summarize bullet points on paper as I spoke, with my face hidden at points, as a kind of visual translation, with photographs.
Thursday, May 5, 2016
Leonore Gordon, LCSW; (718) 783 1986; Leonore1234@aol.com Please do not duplicate without permissionShattering the Myth of "Wow! She's Gotten So Much Better!" with “Your Neighbor with Parkinson’s is Feeling Better For the Moment, Thank You, but Check Back in an Hour....”As a 58-year old female poet and retired family therapist, with 15-plus years of living with Parkinson’s under my belt, I aim to take on PDF’s challenge for Parkinson’s Awareness Month, ie. “Which myth about Parkinson’s would you most want to shatter?” As a Jewish therapist, I’ll answer a question with a question, and ask, “How many ‘selves’ really exist on a daily basis inside of your neighbor with early-onset, advanced Parkinson’s?” (This is not to imply that we who live with Parkinson’s are like “Sybil” with diagnosable pathology!)I’m referring to the unpredictable and fluctuating states our Parkinson’s bodies morph in and out of throughout each day because of the imperfect medications most of us in later-stage PD need to take every 2-4 hours in order to get up out of a chair and walk. These are medications on which we are dependent to treat our disease until a cure is found, but their consistent and hourly effectiveness is far from a sure thing.
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